This 160-page, spiral bound book, first published in 1998 and revised in 2004, presents a substantial amount of helpful and interesting information pertaining to achromatopsia. This is a very useful book not only for individuals and families who are affected by this rare vision disorder but also for vision care professionals, special education teachers, counselors, and other professionals who work with the visually impaired. The information that is included in this book was gathered in various ways, including input from numerous individuals affected by achromaotpsia, library research, and consultations with specialists in different fields. The author, Frances Futterman, has complete achromatopsia.
Following are titles from the Table of Contents page of the current edition of Understanding and Coping with Achromatopsia:
- What is achromatopsia?
- What is it like to have achromatopsia?
- Comparing achromatopsia with other vision disorders
- Individual differences
- Vision and coping strategies of a complete achromat
- Inheritance factors
- The genetics of rod monochromacy
- The genetics of blue cone monochromacy
- Achromats who see color
- Getting diagnosed
- Achromatopsia in print
- About being colorblind
- Adapted lifestyles and adapted environments
- Orientation and mobility
- Accommodations in the workplace and elsewhere
- Vocational choices for persons with achromatopsia
- Social and psychological aspects of achromatopsia
- Using adaptive devices
- Options for magnification
- Adapting indoor lighting for achromats
- Making reading easier
- Special needs in school
- Reading formats used by achromats
- Options in tinted lenses for persons with achromatopsia
- Networkers' input regarding tinted lenses
- What are the best lenses for achromats?
- Sources for tinted lenses and related products
- Sports experiences of networkers
- Scientific studies of achromatopsia
- Genetic research studies of rod monochromacy
- Disclosure of visual impairment
- Accessing services for the visually impaired
- About not being blind
- Other vision problems that can affect achromats
- Types of vision care specialists
- Misdiagnosis, uncertain diagnosis, and related matters
- Ways to help people understand how achromats see
- Other useful and interesting articles
The book, Understanding and Coping with Achromatopisa is NOT in print at the present time. To accommodate those who need to read this very important book, I am making a copy of it available in PDF format.
Before downloading this book, you must agree to the following: that the book is for your own personal use and that it is not to be reprinted for sale or for distribution. You may print a copy for yourself, a relative, a teacher, your doctor, or any other individual who is directly concerned with achromatopsia.
If you wish to have a bound copy of this book, take the PDF file to a copy center that has a Xerox DocuTech printer. For a fee, the copy center will print a copy of the book, with the pages back to back. Ask that the print setting be made as light as possible so that the type does not become bloated in appearance. For an additional fee at the copy center you can purchase front and back covers for the book (I recommend 110LB card stock but most copy centers can only provide 60LB card stock, which is adequate). I also recommend spiral binding of the completed book, as this allows it to be opened and read more easily than other binding methods allow. Most pages have 1/2" margins, which allow for binding while allowing maximum space for text. If you find that sample pages from the DocuTech printer do not have this margin width, have the technician adjust his machine.
A printed copy of the book can also be stored and read in a standard 3-ring binder after the pages have been punched to fit the 3-ring binder.
If you have access to a good PostScript laser printer that can print duplex pages (pages back to back), you can also print this PDF file very quickly on such a printer, later binding the book as you wish. Again, the pages should have 1/2" margins. If they do not, check Acrobat Reader print settings and adjust them until you get the 1/2" margins desired.
The copyright of this book remains with the author, Frances Futterman. This book is NOT to be distributed in any fashion which violates the user agreement stated above.
To download a copy of Understanding and Coping with Achromatopisa click on the following link Understanding and Coping with Achromatopsia.